Our annual Community Weekend brings together leukodystrophy sufferers and their families, alongside doctors, researchers and scientists from around the world to discuss how leukodystrophies affect them and to build long lasting and supportive relationships.
What’s involved?
- Presentations from medical professionals
- Group Q & A sessions
- Workshops & activities for families
- Peer networking & support
- Geographically central UK venue
- All-inclusive stay for affected families
- A wealth of knowledge & research.
