Our impact reports are key to ensuring our support and information services meet the needs of our community. Please see our most recent impact reports below which can be downloaded.
This report was based on an online feedback survey which attendees completed. This included individuals and families affected by leukodystrophy and professionals (doctors, researchers, pharmaceutical representatives and patient advocates). The event included a science day for professionals, which was co-hosted with Leukolabs, and two days for everyone, including presentations, workshops and children’s activities.
15th December 2025
This impact report was based on the findings from our Support Services Impact Survey which gathered the views of those who had accessed support within the charity. Respondents included those who have received one to one support, accessed our Connecting Together programme attended online community meetings or joined our Facebook group.
5th March 2025
This impact report was based on the findings from the impact survey which gathered the views of those supported by Alex TLC from around the world. The results of the survey, as outlined in the report, will be used to direct the services provided by Alex TLC and identify priorities for future work, service gaps and […]
