For everyone affected by leukodystrophy

We are Alex, The Leukodystrophy Charity (Alex TLC)

Since 2004, Alex TLC has provided invaluable support and information to people affected by leukodystrophy – a group of rare, genetic disorders affecting the brain and spinal cord.

What began as a small support group in a single mum’s kitchen has since grown to become the only UK charity providing support and information to people affected by any of the leukodystrophy conditions worldwide.

There are more than 100 known types of leukodystrophy, including some so rare they affect only one or two individuals. However, many share common symptoms, and every type has a profound impact on the lives of those affected.

Several of our staff have first-hand experience of navigating life with leukodystrophy, and it is this personal connection that drives our work to improve prevention, diagnosis and treatment, while supporting those currently living with these cruel conditions.

About Us