Voice of the Patient
Cerebrotendinous Xanthomatosis (CTX) Report
CTX Alliance have produced ‘Voice of the Patient’. This is a report from Patient-Focused Drug Development Meeting on Cerebrotendinous Xanthomatosis (CTX)
To view: CTX Voice of Patient Report
To find out more about CTX Alliance: https://ctxalliance.org/
There will be CTX specific content at the ULF family conference which is being held in June. To find out more about the conference and sessions available: https://ulf.org/news/family-conference/
