Ukraine Rare Disease Resource Centre

For those with a rare disease from Ukraine

Eurordis have set up Ukraine Rare Disease Resource Centre to support people living with a rare disease from Ukraine, both those currently in the country and those who have sought refuge in the EU.

Please share this with anyone who might find it helpful!

Please click on the link to access the centre: https://www.eurordis.org/ukraineresources

Alex - The Leukodystrophy Charity