|Dear Alex TLC Family
Sara & Karen are both very excited to tell you that they are now underway preparing for our second Digital Community Weekend on 20th & 21st November 2021.
The event will include presentations about condition management, access to medicines, newborn screening, updates on existing and new research initiatives.
There will be a professional round table, bringing research companies and medical professionals together to share information and encourage collaboration and progress.
You will be able to enjoy a variety of activities including wellbeing workshops, sessions to help understand and get involved with the work of Alex TLC, and entertainment. There will also be opportunities to speak to others facing similar challenges to you.
For the first time, we are charging a small fee for those attending our digital community weekend. Like many small charities we have seen a significant fall in income from reduced fundraising activities and voluntary donations. It’s been a difficult decision and one we hope you understand. To save money and secure your place now, please purchase the early bird tickets by clicking the link below:
|Thank you and we very much look forward to seeing you all in November.
Sara & Karen