What is good quality of life for people living with inherited metabolic disorders?
Metabolic Support UK aimed to answer this question in their Thoughts into Action research project. It used a research methodology that allowed people to speak, on their own terms, and for their stories to be meaningfully used to affect direct change. Our CEO, Sara Hunt, was on the steering committee for this project.
They have produced a Thoughts into Action report which is now ready to view: MS UK Report