ALD Archives

Parkrun Fundraising Challenge

August 2023

Thomas’ parkrun challenge for Sam My name is Thomas Cawley and I’m 8 years old. I decided that I wanted to raise money for Alex TLC because it’s a charity that has supported my friend Sam and his family, since he was diagnosed with Adrenoleukodystrophy in March 2021. I decided that I would set myself the challenge of running every Hereford Parkrun in June, this meant that I had to run 3.1 miles every Saturday at the adult parkrun and 1.2 Miles every Sunday at the Junior Parkrun.

Great North Run

May 2023

Take on the Great North Run Half Marathon on 10 September 2023.

Newborn Screening Study

June 2022

Should ALD be included as part of the newborn screening programme? Are you a man aged 16 and over affected by ALD/AMN? Or their family member/carer? Complete our survey and let us know your thoughts about ALD being included as part of the newborn screening programme: https://www.screenourboys.org/post/newborn-screening-study The deadline to complete the survey is the end of Monday 11th July 2022.

Charlie’s Head Shave for Alex, The Leukodystrophy Charity

May 2022

Charlie has decided to shave his head to support his Son, George

Spar Community Cashback Campaign

April 2022

Please nominate Alex TLC for a chance to win up to £10,000! SPAR invests back into the local communities they serve, looking after their shoppers and helping to build and strengthen their local neighbourhoods. The Community Cashback scheme gives grants to local voluntary or community organisations who need it the most. Nominate us today by visiting: https://www.spar.co.uk/community-cashback Enter the following information: Your Name Your email address Your phone number Your postcode Region: please enter the region you live in Name of the Organisation: Alex TLC Location of Organisation: London

Help shape a vital children’s support resource on Leukodystrophy

February 2022

Be Part of our Children’s Book for ALD Steering Group