Thomas’ parkrun challenge for Sam
My name is Thomas Cawley and I’m 8 years old. I decided that I wanted to raise money for Alex TLC because it’s a charity that has supported my friend Sam and his family, since he was diagnosed with Adrenoleukodystrophy in March 2021. I decided that I would set myself the challenge of running every Hereford Parkrun in June, this meant that I had to run 3.1 miles every Saturday at the adult parkrun and 1.2 Miles every Sunday at the Junior Parkrun.
Take on the Great North Run Half Marathon on 10 September 2023.
Should ALD be included as part of the newborn screening programme?
Are you a man aged 16 and over affected by ALD/AMN? Or their family member/carer?
Complete our survey and let us know your thoughts about ALD being included as part of the newborn screening programme: https://www.screenourboys.org/post/newborn-screening-study
The deadline to complete the survey is the end of Monday 11th July 2022.
Charlie has decided to shave his head to support his Son, George
Please nominate Alex TLC for a chance to win up to £10,000!
SPAR invests back into the local communities they serve, looking after their shoppers and helping to build and strengthen their local neighbourhoods.
The Community Cashback scheme gives grants to local voluntary or community organisations who need it the most.
Nominate us today by visiting: https://www.spar.co.uk/community-cashback
Enter the following information:
Your email address
Your phone number
Region: please enter the region you live in
Name of the Organisation: Alex TLC
Location of Organisation: London
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