Here are the latest news stories from Alex TLC and about topics we think you'll find useful.
On our 11th Day of Christmas, we hear about Sam’s diagnosis of ALD earlier this year. Sam was diagnosed in March this year with adrenoleukodystrophy (ALD). His condition has deteriorated rapidly since diagnosis, and he is now completely dependent.
On our 9th Day of Christmas, our Support Services Manager, Karen Harrison, gives us an insight into her family’s Christmas. My identical twin sons, Cameron, and Alexander, were diagnosed with childhood onset cerebral adrenoleukodystrophy (ALD) in 2002, up until then we had just been a normal family enjoying life…
On our 5th Day of Christmas, we remember a very special boy called Alex. Our Alex was diagnosed with adrenoleukodystrophy (ALD) just after Christmas 2001, when he was 7, and I think the doctors knew before but wanted us to have that last Christmas without the pain they knew was coming.
On our 4th Day of Christmas, we remember a cheeky, lovable boy called Lewis. Lewis was one of a kind, cheeky but so lovable. He was diagnosed at a young age of around 3/4 with autism and ADHD.
