Local voluntary or community organisations and charity name * Alex TLC
Location of Organisation* The town you live in
Why this organisation should receive the grant (explaining the exceptional service they have shown in their local community in max 300 words) *
Please write about your own personal involvement with Alex TLC, the support we’ve given you and the difference it has made.
Information on what the grant would be spent on *
Please choose from the examples of how the grant may be spent below:
Alex TLC funds a community weekend which brings together patients, families, doctors and scientists. A grant could help to cover some of the event costs and pay for some families to attend.
Alex TLC provides means tested grants to help those affected by leukodystrophies access care, equipment and therapy not available through statutory services.
Alex TLC wants everyone to be able to access the help they need to cope with their condition, they provide one to one support by video call, email, phone and home visits.
Link to website or social media page* www.alextlc.org
