Foundation supporting individuals with ALSP/HDLS

Last week we met with Heidi Edwards the President of Sisters’ Hope Foundation

We look forward to working together to support the work of each charity and our mutual beneficiaries with Adult-onset Leukoencephalopathy with axonal spheroids and pigmented glia (ALSP)/Hereditary diffuse leukoencephalopathy with spheroids (HDLS)

To find out more about their foundation: https://sistershopefoundation.com/