Share your story this festive period

Help us to raise awareness of leukodystrophy through our 12 days of Christmas social media campaign.

We are looking for 12 individuals or families to share their stories and talk about the different ways their lives are impacted at this time of year. Your stories will be shared in the the lead up to Christmas.

If you would like to get involved, please get in touch by emailing for more information.

Stories to be submitted by 19th December 2021.

Please note, if you do not celebrate Christmas you can still share your story with us. We can upload it to our website and share it on social media at another time during the year.