Caroline Ansell is the Member of Parliament for Eastbourne & Willingdon, raised the heart-breaking case of 11 year old Alfie from Eastbourne. At 8 years old he was diagnosed with ALD – a rare and life-limiting condition.
He can no longer walk, chew or swallow and Alfie’s mum Rosie, has described this as every parent’s nightmare.
In the United States a simple post-natal check is used which could have led to a different outcome for Alfie. I asked if similar could be used here in the UK.