APPG Meeting – Newborn Screening- 9th June 2021

On Wednesday 9th June, the All Party Parliamentary Group (APPG) on Rare, Genetic and Undiagnosed Conditions held a meeting on newborn screening. The Newborn Screening Alliance is working with Genetic Alliance UK to improve access to newborn screening.

Guest speakers at the meeting include:

  • Professor Simon Heales, Great Ormond Street Hospital

  • Professor Laurent Servais, UK Newborn Screening Alliance

  • Dr Will Evans, Niemann-Pick UK

  • Amanda Mortensen, Batten Disease Family Association

  • Karen Harrison, Alex The Leukodystrophy Charity

  • Georgina Morton, ArchAngel MLD Trust

Alex - The Leukodystrophy Charity