In person event showcasing ground-breaking rare disease research and technology

Gather your friends and family to join us in attending Cambridge Rare Disease Network’s RAREfest event. We are proud to be media partners for this vibrant and vital event that puts those affected by Rare Diseases front and centre alongside talks, demos, art and films of pioneering research, life-changing tech and real life stories! Head here  for more info and FREE tickets #science #technology #RareDisease #PatientVoice #advocacy

RAREfest22 returns in person showcasing ground-breaking rare disease research and innovative life changing technology, But at the forefront of this event are the patients themselves. Cambridge Rare Disease Network’s festival will put the rare disease community centre stage, with inspirational talks including:


Rishi Nag, Singing Science – Genomics The Musical – a one-person show combining the basics of Genetics and the impacts on the rare disease community, the show provides an engaging way to familiarise yourself with key concepts – fit for all ages.




Lucy McKay, Medics4Rare Diseases – Rare Disease Podcast 4 Medics is broadcasting a live recording at RAREFest featuring guests from across the rare disease community. Expect an equally heart-wrenching and heart-warming experience.







To find out more and to get your tickets, visit: http://ow.ly/theA50KXcLA


Alex - The Leukodystrophy Charity