Rare Disease long-term caregiving

Resource regarding challenges and burdens faced

Rare Revolution Magazine have produced a resource about Rare Disease long-term caregiving. It is to raise awareness of the challenges and burdens faced by Rare Disease Caregivers with gentle reminders to take care of themselves.

To read the full article: https://edition.pagesuite-professional.co.uk/html5/reader/production/default.aspx?pubname=&edid=b51c7bda-fe81-4eb5-aa0e-618e96c17730&pnum=35


Alex - The Leukodystrophy Charity