It’s less than three weeks until Rare Disease Day on Thursday 29th February. We are sharing about the different ways you can get involved.
The day provides an opportunity to help raise awareness of leukodystrophy and you can support us by….
Sharing your story
You can get involved by sharing your story to help raise awareness of leukodystrophy and the impact it’s had on you and your family. We would also like you to share how long we’ve been supporting you for and the ways you’ve been involved in our community. If you are interested in sharing your story, please email email@example.com by Monday 12th February.
Lighting up our stained glass window
Please join us in brightening up our stained glass window for Rare Disease Day. You can donate an amount of your choice and add a photo and meaningful message.
Help us by lighting up our window
Using our social media frame
Help to raise awareness of leukodystrophy on Rare Disease Day by using our frame on your social media profile pictures. Download our social media frame and help to spread the word!
Get yours here: RDD Frame
Sharing our social media posts
Help us to raise awareness of leukodystrophy by sharing, liking and commenting on our posts on Rare Disease Day. Let’s see if we can beat last year when our posts were shared, liked and commented on over 175 times.
Visit our social pages: