Rare Disease Day 2022

Rare Disease Day is on Monday 28th February 2022

This year’s theme is #LightUpForRare, a global chain of lights at 7pm around the World on Rare Disease Day.



Visit one of our charity shops on Rare Disease Day and get 10% off the price of anything blue!

On Monday 28th February we are offering 10% off the price of anything blue that you purchase.

To find out where our shops are: https://www.alextlc.org/our-shops-2/


Ways to Get Involved

There are lots of ways you can be involved in Rare Disease Day…

You can light up our Rare Disease Day Virtual stain-glass window by helping to decorate a panel of it with a chosen colour

Share your story on the Rare Disease UK’s Rare Repository and read many other people’s stories

Light Up for Rare by lighting up your homes on Rare Disease Day. Everyone can participate in the Global Chain of Lights, to find out how:

Raise awareness of Rare Disease Day by sharing our posts and your own stories on Rare Disease Day using the hashtag #RareDiseaseDay2022

Download the Rare Disease Day campaign materials tool kit. It includes social media posts, posters, information packs, fact sheets, infographics and more! Use these materials to raise awareness and instigate change for people living with a rare diseases. To access: https://www.rarediseaseday.org/downloads/


Parliamentary Events
Registration is now open for the Rare Disease UK Parliamentary Receptions for Rare Disease Day 2022. Follow the links to find out more about the events:
For England: https://www.eventbrite.co.uk/e/westminster-virtual-rare-disease-day-2022-reception-registration-259343522457
For Scotland: https://www.eventbrite.co.uk/e/scotland-virtual-rare-disease-day-2022-reception-registration-265014675027

For Wales: https://www.eventbrite.co.uk/e/wales-virtual-rare-disease-day-2022-reception-registration-265012749267


Rare Disease Day Information

To find out more about Rare Disease Day, please view the following websites:

Rare Disease UK https://www.raredisease.org.uk/

Rare Disease Day Website https://www.rarediseaseday.org/

Alex - The Leukodystrophy Charity