Pledges needed for this years Big Give Christmas Campaign.

🙏Help us meet our pledge target 🎯 so that online donations made during our December campaign can be DOUBLED!
After a difficult year would you be able to make a minimum pledge of £100 for us? @BigGive #ChristmasChallenge21

Pledges need to be a minimum of £100, payable once the December campaign has ended.


The deadline for reaching our pledge target of £2,000 is 27th August 2021

🎄Our Christmas Big Give Campaign.🎄

Children’s support tools for a Rare Disease – Big Give Christmas Challenge 2021

We are raising funds so we can write and illustrate a book designed to support children affected by ALD and their siblings. The primary goal is to support children, to build emotional resilience and openness to talk and ask questions following the diagnosis of a rare disease.
Our research shows how both an affected child and their sibling’s life can change following diagnosis. For the sibling they can easily become a ‘shadow’ or have their needs met after the siblings who will have multiple hospital appointment. Family dynamics will change, children will see upset parents, they will hear a lot of confusing words they do not understand. There are no child focused resources that explain to siblings the affects ALD will have on the family unit.

Our book will be a resource that can be utilised by families following a diagnosis of ALD of one of their children. The book will be from the perspective of a sibling diagnosed with ALD. It will show the experience of the situation, one that is relatable and understandable for children. Alongside practical information, we are to include the emotional side with key messaging being of hope, playfulness, joy and how a sibling’s relationship can play a supportive role.