Sara’s sons were diagnosed with adrenoleukodystrophy in 2001.
She is proficient in administration and has a Level 3 NVQ in Leadership & Management. Her passion, as well as professional and personal experience, was instrumental for the development of ALD Life into the lead organisation for ALD and AMN in the UK, and its subsequent expansion to Alex, The Leukodystrophy Charity in 2019.
She leads on projects to deliver best practice treatment and prevention within the NHS and is responsible for partnership development and the overall strategic direction of the organisation.
Click here to read Alex’s story