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What we do
Alex’s story
Karen’s Story
People
Personal Stories
Impact Reports
Press Enquiries
Key Partners
Never Forgotten
Conditions
What is a leukodystrophy?
The different leukodystrophies
Symptoms & treatments
Condition management
Supporting someone with leukodystrophy
Support
One to one support
Peer support
Our Children’s Book for ALD
Community Weekends
Information
Grant programme
‘In Conversation with…’ – video series
Newborn Screening Campaign
Campaigns and Projects
Research and Clinical Trials
Useful links
For professionals
Covid-19
Counselling Service
Get involved
Fundraise
Walk ‘n’ Roll
Online-Charity-Shop
Corporate opportunities
Volunteering and job vacancies
Complete our surveys
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Iraj Idafar, Trustee
Iraj Idafar, Trustee
Bio coming soon
