Trustee Board

Karen is a Sustainability and Social Value Manager for an NHS Organisation. Karen began her working life in Conservation and Research which enabled her to work all around the globe for many years. As her family life changed Karen changed direction and retrained to become a qualified and registered Operating Department Practitioner, working clinically in Anaesthetics and progressing to Theatre Manager. Karen then stepped out of the clinical setting and into Strategic Management where she led the workforce, education, development and training for the Allied Health Professionals across Kent and Medway, picking up several post graduate qualifications along the way including an MBA in Healthcare Management and undertaking an internship with the National Institute of Health research. Karen is passionate about people, about Equality, Diversity, Inclusion and Belonging, she is a champion for care and she is also an advocate for volunteering which is what brought Karen to Alex TLC.

Tulsi is in her final year of studying Geography at UCL and has become involved in Alex TLC more recently, taking part in the Steering Group. She became aware of the charity through the diagnosis of family members and is a young carrier herself.

Dr John Livingston is a Professor of Paediatric Neurology at the University of Leeds and Consultant Paediatric Neurologist at Leeds Teaching Hospitals. He leads the Inherited White Matter Disorders Multi Disciplinary Team in Leeds and the national paediatric Inherited White Matter Disorders network. He is the driving force behind the NHSE 

Emma is a Research Inclusion Manager at the National Institute of Health and Care Research (NIHR).  Prior to this Emma worked as an Equality, Diversity and Inclusion (EDI) specialist and a Qualified Chartered Librarian in the education sector.  Emma holds a BA (Hons) in English with Journalism and a MA in Librarianship.

Bio coming soon

Dr Gavin Bowen-Metcalf is a Cancer Biologist and Lecturer of Biomedical Sciences at Anglia Ruskin University, Cambridge, with experience in the fields of molecular oncology, genomics and histopathology.