Our meeting in July

We have an upcoming online community meeting on Thursday 13th July 13:00-14:00

This meeting is an opportunity to meet other community members. Our online meetings provide a space to ask questions and share experiences, and can be a form of support for your leukodystrophy journey. They are for everyone to attend, whether you are an affected individual, parent or family member.

Please contact info@alextlc.org if you’d like to attend or you have any questions.