Online Community Meeting

Join our next meeting on Thursday 18th May 11:00-12:00

Our upcoming online community meeting will be on Thursday 18th May 11:00-12:00

This meeting is an opportunity to meet other community members. Our online meetings provide a space to ask questions and share experiences, and can be a form of support for your leukodystrophy journey. They are for everyone to attend, whether you are an affected individual, parent or family member.

Our new counsellor, Jenna Jones, will be joining the meeting. It will be an opportunity to meet her and find out more about the counselling service in the charity. You can ask any questions you may have and learn about what the counselling sessions involve.

Please get in touch if you’d like to attend or you have any questions, by emailing

Alex - The Leukodystrophy Charity