Newborn ALD Screening Study

Summary Report Available to View

Our study involved both a survey and individual interviews to capture attitudes and opinions about whether ALD should be included as part of the newborn screening programme.

Thank you to everyone who took part in our study, your input was vital in producing much needed evidence of the need to add ALD to the newborn screening programme.

There is a summary of the study available to view: Newborn ALD Screening Study Summary

If you have any questions, please contact

Alex - The Leukodystrophy Charity