Nathan 50k Hike for Alex TLC

Please support Nathan, a sufferer of #Adrenoleukodystrophy who is celebrating 21 years of his bone marrow transplant by walking 50k in the Peak District on July 3rd to raise money for Alex TLC. Let’s help Nathan smash his target.

Support Nathan on his just giving page:

https://www.justgiving.com/fundraising/nathan-long2851

Nathan says:

“As most of you know (and have heard me talk about it a million times!) I suffer from a rare condition known as Adrenoleukodystrophy (ALD). ALD is a rare inherited disorder affecting the adrenal glands and ‘white matter’ of the brain. To help slow the onset of the condition I received a bone marrow transplant in 2000.

The celebrate 21 years of my bone marrow transplant I will be walking 50k in the Peak District on July 3rd to raise money for Alex TLC who are a charity incredibly close to myself and my family’s hearts.
Alex TLC support families dealing with ALD and other rare dystrophys and the highs and lows that come with it.

If you would like to donate any amount of money and watch me lose a few covid pounds in the process, please use the the following link to donate 😁😁”

Please remember to sign our petition to get ALD added to the UK’s Newborn Screening Programme.

Follow this link to learn more ways to fundraise for us.