‘My Neuro Survey’

Fill in ‘My Neuro Survey’, the largest survey of people with neurological conditions in the UK

1 in 6 people in the UK have a neurological condition – that’s any condition that affects the brain, spine and/or nervous system. When you have a neurological condition, getting the right care, treatment and support at the right time can make a lifechanging difference. But there are huge levels of unnecessary variation in access and experience of care – with your help, we want to change that. Making the case for change is our biggest challenge. The Neurological Alliance want everyone affected by neurological conditions to have access to high quality, joined up care and support to meet their needs whoever they are, whenever they need it and wherever they live. Taking part in My Neuro Survey makes a huge difference. In 2019, over 10,000 people took part. Results from previous surveys have been used to improve services in hospitals, develop new specialist centres, and spark debate in Parliament.

Every two years The Neurological Alliance runs My Neuro Survey to give an accurate picture of people’s experience of neurological care, treatment and support across the country. This year’s survey includes a version for children and young people – so whatever your age and whatever your neurological condition, you can take part.

It takes around 20 minutes to complete, and by taking part you will help to put an end to poor care and improve treatment, services and care for people with neurological conditions. Anyone in the UK with a neurological condition can take part.  Make your voice heard.


To find out more information: https://www.neural.org.uk/news/we-want-you-my-neuro-survey-opens-today/


To complete the survey: https://www.myonlinesurvey.co.uk/myneuro/?GEN


Please note: My Neuro Survey closes on Sunday 6th February 2022

Alex - The Leukodystrophy Charity