My Neuro Survey Coproduction Group

Neurological Alliance are looking for members

The Neurological Alliance are looking for people with and affected by neurological conditions to work alongside Alliance staff and member organisations and help shape a new campaign.

Coproduction is all about bringing together people who have different skills and experiences, including those who have a personal connection to, or lived experience of neurological conditions, to find the best solutions.

The campaign will be informed by the responses to My Neuro Survey, the largest patient experience survey of people with neurological conditions in the UK. It asks whether people are getting the care and support they need for their condition and includes questions on things like access to specialists, social care, employment and financial support, mental wellbeing and the impact of COVID-19 on treatment and care. More than 8,500 people have shared their experiences through the survey.



To find out more:

Alex - The Leukodystrophy Charity