Mental Health & Rare Disease Paper

‘Mental health care for rare disease in the UK – recommendations from a quantitative survey and multi‑stakeholder workshop’

Over 1,000 people took part in Genetic Alliance’s survey about the impact of living with a rare condition. It included mental health, experiences of support and recommendations for healthcare professionals and rare disease services.

To read the recommendations and full paper, visit:


Alex - The Leukodystrophy Charity