Online Community Meeting

On Tuesday 21st March 18:00-19:00

We have an upcoming online community meeting on Tuesday 21st March 18:00-19:00. We hope an evening meeting will mean that community members who have commitments during the day can attend if they’d like to. If there is a specific time or day you’d like a meeting to be held, then please get in touch and let us know.

Never been to a meeting before?
 Here are some of the reasons you may like to attend:
– Safe space to ask questions and share experiences
– Form of peer support for your leukodystrophy journey
– Opportunity to meet other members of the community in a similar situation to yourself


Please get in touch if you’d like to attend or you have any questions by emailing


Alex - The Leukodystrophy Charity