Are you or a family member affected by a Lysosomal Storage Disorder (LSD)?
Mucolipidosis type IV, MLD, GM2 gangliosidosis and Krabbe Disease are types of Leukodystrophy which are classified as LSDs.
Share your experiences of the care and services you receive by completing the LSD survey: https://www.surveymonkey.co.uk/r/GNSTVVB
To access a printable version of the survey: LSD Collaborative Community Survey 2022
This should be posted to addressed to Suzanne, 45 Peckham High Street, London, SE15 5EB.