Location & Diagnosis Needed

Help us to improve our support and future events

We are currently updating our database and we need two pieces of information from individuals we support:


Your Location: town and city

We are planning on putting on future local face to face beneficiary events, we want to make sure we choose locations that are conveniently located for everyone to attend.


Your Diagnosis: the condition that affects you/your family and who it affects

It is important we have this information so that we are aware of the leukodystrophies affecting our community. It will enable us to support you under diagnosis and so that we can send you any condition specific information and updates.


Please send this information to info@alextlc.org


Alex - The Leukodystrophy Charity