We are currently updating our database and we need two pieces of information from individuals we support:
Your Location: town and city
We are planning on putting on future local face to face beneficiary events, we want to make sure we choose locations that are conveniently located for everyone to attend.
Your Diagnosis: the condition that affects you/your family and who it affects
It is important we have this information so that we are aware of the leukodystrophies affecting our community. It will enable us to support you under diagnosis and so that we can send you any condition specific information and updates.
Please send this information to firstname.lastname@example.org