Krabbe Disease – Newborn Screening US

The Federal Newborn Screening Advisory Committee voted to add Krabbe Disease to their Recommended Newborn Screening Panel

An exciting announcement shared by Hunter’s Hope Foundation The Federal Newborn Screening Advisory Committee voted to add Krabbe Disease to their Recommended Newborn Screening Panel. This is incredibly positive news for our Krabbe Disease community members in the US. With newborns now being screened for Krabbe at birth, this opens the door to early detection and lifesaving treatments.

To find out more: https://www.huntershope.org/newborn-screening/achdnc/

Alex - The Leukodystrophy Charity