Join our Steering Group 🗣️💬

We are looking for individuals to join our existing Steering Group

The Steering Group has previously given us valuable feedback on resources and information we have provided within our charity. This feedback has included ideas of what would be helpful for others to know and ensuring the information we have produced is understandable.

We are currently developing new services and projects and it would be great to have feedback from individuals within our community.

If you would be interested in being part of the Steering Group, or would like some further information, then please contact


Alex - The Leukodystrophy Charity