Impact Report 2022

Available to view and download

Our Impact Report 2022 is now ready to view.

Thank you to everyone that took the time to complete our Impact Survey. Your feedback is key in ensuring our support and information services meet the needs of our community.

The Impact Report helps to direct our work. The conclusion section of the report details a list of actions we’d like to take and future concepts we’d like to explore within different areas of the charity. The report is important as it helps to demonstrate the impact of leukodystrophy and raise awareness of the work of the charity to our stakeholders.

To read our Impact Report, please click on the link to access a PDF version:

Alex TLC Impact Survey 2022 

If you have any questions or comments, then please don’t hesitate to get in touch by emailing


Alex - The Leukodystrophy Charity