Helix of Love

Collection of poems written by parents of children with rare genetic conditions

Helix of Love is a collection of poems written by parents of children with rare genetic conditions who explore the lived experience of rare conditions. The poems reflect on what everyday life is like at a time when so much focuses on the promise of genomic medicine. The poems were published in September.

To view these wonderful poems, please visit: Helix of Love poems

Alex - The Leukodystrophy Charity