GM1 Resources

Passage Bio have two new GM1 resources; a clinical trials website and a GM1 Newsletter.

Passage Bio Clinical Trials website –

They have developed a clinical trials website to make it easier for families to understand how their trial works as well as provide resources for those affected by GM1 such as our GM1 disease education brochure and common questions asked about participating in the trial.

GM1 Newsletter – GM1 Gangliosidosis Clinical Development Program Update – May 2022

Passage Bio inaugural newsletter is another resource to help explain their trial, provide latest updates on the data, and an opportunity to highlight some of our GM1 team members.

Alex - The Leukodystrophy Charity