Families needed for risk-feeding study

Are you a family member, carer or guardian of a child (under the age of 16 who is currently risk feeding or has risk fed in the past? Do you have experience with risk-feeding discussions and decisions with medical professionals? 

Risk feeding (also sometimes known as comfort feeding or eating and drinking with acknowledged risk), is when a child eats and drinks with the knowledge that they risk choking or aspirating when doing so. Currently decisions in this area do not follow a protocol, which affects standardisation of practice. To resolve this issue, we are looking for family members, carers or guardians with experience of being involved in paediatric risk-feeding decisions and discussions with children under the age of 16 to take part in a focus group on Zoom.

Your participation would require no more than 2 hours in a focus group on Zoom on Friday 1st July at 1:30pm.

During the focus group, discussion will be facilitated to develop a consensus of questions which should be asked at risk-feeding decisions. This information will then be analysed and reported. Your participation in this study will remain anonymous throughout.

Do you know of anyone who may fit the bill and maybe willing to take part? If you would like to take part, or know someone who may be willing to take part? Please contact Imogen Keen (imogen.keen.20@ucl.ac.uk) with yours or their contact details and we will forward you some participant information.

The deadline for applying to take part in the study is Wednesday 29th June.

Alex - The Leukodystrophy Charity