Disbelief and Disregard: Gendered Experiences of Health and Social Care for people with Energy Limiting Conditions

Research findings launch webinar: 14th September 14:00-15:30 (BST)

A free webinar from the team at Chronic Illness Inclusion and the Disbelief and Disregard project of collected testimonies of healthcare encounters from women, including trans women and non-binary people, with energy limiting conditions (ELCs). Please see event information below:-

For the last 18 months, researchers from University of Liverpool, Liverpool Hope University and Chronic Illness Inclusion have been researching gendered experiences of disbelief and disregard in relation to Energy Limiting Conditions (ELCs) also referred to as Energy Limiting Chronic Illness (ELCI). Join us at 2.00pm (BST) on 14th September 2023 for a 90min webinar (with two short breaks) as we launch the policy report and animation which document the results of the research. There will be time for a Q&A. We will also launch a new project with opportunities for people with ELC/ELCI to get involved.

This webinar will launch resources from the research, including:

  • A series of briefing papers and a research report based on original data collected by Chronic Illness Inclusion demonstrating the barriers to care experienced by people with ELCs.
  • A short animation by Stacy Bias of YourStory.studio and Ell Rose of Fourfooteleven.com that summarises the experiences of disbelief faced by people with ELCs in health care.
  • We will also launch a new project with opportunities for people with ELC/ELCI to get involved.

Access information:
The webinar will take place on zoom at 2.00pm 14th September 2023. It will last 90 minutes including two short breaks. Live captioning will be turned on. There will be live BSL translation. The webinar will be recorded to be made available online afterwards.

Register for the webinar here: https://www.eventbrite.com/e/research-findings-launch-gender-health-care-energy-limiting-conditions-tickets-692346626397?aff=oddtdtcreator

Find out more about the project here http://disbeliefdisregard.uk/

Alex - The Leukodystrophy Charity