Monday 7th to Sunday 13th August

Dazzle4Rare was established in July of 2016 with a simple goal of signal boosting rare and undiagnosed community messages. Since that first event, we have been working with allies, advocates, small and large non-profit organisations, and others who wish to elevate rare and undiagnosed voices.

You can help make a difference by sharing our posts this week promoting the work of other rare disease charities.

To find out more: Dazzle4Rare Information

All of the rare disease organisations and advocates involved in the week:

We wanted to share messages from a few of the rare disease organisations involved in this impactful awareness week:

Alex - The Leukodystrophy Charity