Dazzle4Rare Week

A cross-community rare disease awareness week to enable rare disease communities to share messages for one another so that they can reach a wider audience

Dazzle4Rare was established in July of 2016 with a simple goal of signal boosting rare and undiagnosed community messages. Every August, like, share, and retweet any of the posts on our and other rare disease charity social media channels. Share information about rare diseases, your own story, or educational links and information for everyone to learn more – all using the hashtag #Dazzle4Rare


Share our community message and help raise awareness of the work of our charity 💙

Our mission is to make a difference to those affected by leukodystrophy. There are over 100 different known types of leukodystrophy; Alex TLC focuses on the similarities caused, embracing all affected within a community of Tender Loving Care #dazzle4rare


Like and share our posts to help raise awareness of leukodystrophy 💙



Alex - The Leukodystrophy Charity