Info about Vaccines for kids aged 12-18 ( * contact your GP if you haven’t heard by the end of August)
The Covid pandemic has affected how we lives our lives, including accessing services and how we socialise with others. This has taken a huge toll on our mental health and it’s vital that we seek support when need it. It’s important that we recognise the additional challenges that individuals affected by Leukodystrophies and their families face during this already difficult time. The Covid pandemic has impacted how many health care and support services are accessed and has restricted the support many individuals receive from family and friends.
There are organisations there to help support your mental health during this challenging time. Please find information below:
Samaritans 116 123
Saneline 0300 304 7000
Mental Health Matters
Provide a helpline providing emotional support, advice and guidance. Please click link for phone numbers for different geographical areas
Mental Health Foundation
Guidance to help mental health during the coronavirus outbreak
Every Mind Matters
Providing information and advice about how to look after your mental health
Together for Short Lives
Together for Short lives have put together a Self-help booklet for parents with seriously ill children.