Services Without Symptoms

#baseSelector{margin-bottom:1.6em}#baseSelector h2{color:#003160;font-weight:600;font-size:1.6em}#baseSelector li{margin-bottom:.5em}#baseSelector p{margin-bottom:.5em}#baseSelector a{text-decoration:underline;color:#003160;font-weight:600;margin-bottom:1em}#baseSelector img.watermark{position:absolute;bottom:1em;right:1em;width:13.125em;opacity:.25}#red_atlc_condition_management_sub_title-block_5cc6dab5249f2{color:#003160;margin-bottom:1.6em}#red_atlc_condition_management_sub_title-block_5cc6dab5249f2 h2.sub-title{font-size:1.25em;font-weight:400;margin-bottom:1em}#red_atlc_condition_management_sub_title-block_5cc6dab5249f2 p{margin:0} This can be a very difficult and scary time for families, as relationships and trust you have built up with doctors and children’s services will change. We provide advice, information and support through the transition from child to adult services.

#baseSelector{margin-bottom:1.6em}#baseSelector h2{color:#003160;font-weight:600;font-size:1.6em}#baseSelector li{margin-bottom:.5em}#baseSelector p{margin-bottom:.5em}#baseSelector a{text-decoration:underline;color:#003160;font-weight:600;margin-bottom:1em}#baseSelector img.watermark{position:absolute;bottom:1em;right:1em;width:13.125em;opacity:.25}#red_atlc_condition_management_sub_title-block_5cc6da2cdd6ae{color:#003160;margin-bottom:1.6em}#red_atlc_condition_management_sub_title-block_5cc6da2cdd6ae h2.sub-title{font-size:1.25em;font-weight:400;margin-bottom:1em}#red_atlc_condition_management_sub_title-block_5cc6da2cdd6ae p{margin:0} Children who are not affected by the condition may also need support to cope with the changes to family life brought about by their family member’s diagnosis with leukodystrophy. Children without the condition may feel upset and scared at what is happening and what may happen.  Alex TLC can provide support to help unaffected children, including directing families to specialist support to give a sense of normality to these children’s lives, including hospice support groups and connecting children in similar situations through our peer support network. See our How We Support You page for more details and to get in touch.

#baseSelector{margin-bottom:1.6em}#baseSelector h2{color:#003160;font-weight:600;font-size:1.6em}#baseSelector li{margin-bottom:.5em}#baseSelector p{margin-bottom:.5em}#baseSelector a{text-decoration:underline;color:#003160;font-weight:600;margin-bottom:1em}#baseSelector img.watermark{position:absolute;bottom:1em;right:1em;width:13.125em;opacity:.25}#red_atlc_condition_management_sub_title-block_5cc6d8e533115{color:#003160;margin-bottom:1.6em}#red_atlc_condition_management_sub_title-block_5cc6d8e533115 h2.sub-title{font-size:1.25em;font-weight:400;margin-bottom:1em}#red_atlc_condition_management_sub_title-block_5cc6d8e533115 p{margin:0} What is PGD? PGT (Pre-implantation genetic testing) is available to couples that are at risk of having a child with a specific genetic or chromosome disorder. It prevents the birth of an affected child by testing an embryo before it is implanted in the uterus (womb).

#baseSelector{margin-bottom:1.6em}#baseSelector h2{color:#003160;font-weight:600;font-size:1.6em}#baseSelector li{margin-bottom:.5em}#baseSelector p{margin-bottom:.5em}#baseSelector a{text-decoration:underline;color:#003160;font-weight:600;margin-bottom:1em}#baseSelector img.watermark{position:absolute;bottom:1em;right:1em;width:13.125em;opacity:.25}#red_atlc_condition_management_sub_title-block_5cc6d82624ca6{color:#003160;margin-bottom:1.6em}#red_atlc_condition_management_sub_title-block_5cc6d82624ca6 h2.sub-title{font-size:1.25em;font-weight:400;margin-bottom:1em}#red_atlc_condition_management_sub_title-block_5cc6d82624ca6 p{margin:0} Normally based on children’s wards or in children’s hospitals, a play specialist can help with simple medical procedures, blood tests and taking medication, and provide distraction therapy to support the child. They can explain medical procedures and equipment to children.

#baseSelector{margin-bottom:1.6em}#baseSelector h2{color:#003160;font-weight:600;font-size:1.6em}#baseSelector li{margin-bottom:.5em}#baseSelector p{margin-bottom:.5em}#baseSelector a{text-decoration:underline;color:#003160;font-weight:600;margin-bottom:1em}#baseSelector img.watermark{position:absolute;bottom:1em;right:1em;width:13.125em;opacity:.25}#red_atlc_condition_management_sub_title-block_5cc6d6f8da031{color:#003160;margin-bottom:1.6em}#red_atlc_condition_management_sub_title-block_5cc6d6f8da031 h2.sub-title{font-size:1.25em;font-weight:400;margin-bottom:1em}#red_atlc_condition_management_sub_title-block_5cc6d6f8da031 p{margin:0} When you or a family member is diagnosed with a serious illness it is important to look after yours and members of your family’s mental health. It is a very stressful and emotional time, so please seek help.

#baseSelector{margin-bottom:1.6em}#baseSelector h2{color:#003160;font-weight:600;font-size:1.6em}#baseSelector li{margin-bottom:.5em}#baseSelector p{margin-bottom:.5em}#baseSelector a{text-decoration:underline;color:#003160;font-weight:600;margin-bottom:1em}#baseSelector img.watermark{position:absolute;bottom:1em;right:1em;width:13.125em;opacity:.25}#red_atlc_condition_management_sub_title-block_5cc6d6712f9a5{color:#003160;margin-bottom:1.6em}#red_atlc_condition_management_sub_title-block_5cc6d6712f9a5 h2.sub-title{font-size:1.25em;font-weight:400;margin-bottom:1em}#red_atlc_condition_management_sub_title-block_5cc6d6712f9a5 p{margin:0} Genetic testing can be used to find out whether a person is carrying a specific altered gene (genetic mutation) that causes a particular medical condition.