Services With Symptoms

#baseSelector{margin-bottom:1.6em}#baseSelector h2{color:#003160;font-weight:600;font-size:1.6em}#baseSelector li{margin-bottom:.5em}#baseSelector p{margin-bottom:.5em}#baseSelector a{text-decoration:underline;color:#003160;font-weight:600;margin-bottom:1em}#baseSelector img.watermark{position:absolute;bottom:1em;right:1em;width:13.125em;opacity:.25}#red_atlc_condition_management_sub_title-block_5f6091d0773f8{color:#003160;margin-bottom:1.6em}#red_atlc_condition_management_sub_title-block_5f6091d0773f8 h2.sub-title{font-size:1.25em;font-weight:400;margin-bottom:1em}#red_atlc_condition_management_sub_title-block_5f6091d0773f8 p{margin:0} We are aware that it can be difficult to obtain life insurance when you have been given a diagnosis of leukodystrophy, Genetic Alliance have some helpful information (add link)

Pressure ulcers (also known as pressure sores or bedsores) are injuries to the skin and underlying tissue, primarily caused by prolonged pressure on the skin. #baseSelector{margin-bottom:1.6em}#baseSelector h2{color:#003160;font-weight:600;font-size:1.6em}#baseSelector li{margin-bottom:.5em}#baseSelector p{margin-bottom:.5em}#baseSelector a{text-decoration:underline;color:#003160;font-weight:600;margin-bottom:1em}#baseSelector img.watermark{position:absolute;bottom:1em;right:1em;width:13.125em;opacity:.25}#red_atlc_condition_management_sub_title-block_5ce6784cf1896{color:#003160;margin-bottom:1.6em}#red_atlc_condition_management_sub_title-block_5ce6784cf1896 h2.sub-title{font-size:1.25em;font-weight:400;margin-bottom:1em}#red_atlc_condition_management_sub_title-block_5ce6784cf1896 p{margin:0} They can happen to anyone, but usually affect people confined to bed or who sit in a chair or wheelchair for long periods of time. Pressure ulcers can affect any part of the body that’s put under pressure. They’re most common on bony parts of the body, such as the heels, elbows, hips and base of the spine.

#baseSelector{margin-bottom:1.6em}#baseSelector h2{color:#003160;font-weight:600;font-size:1.6em}#baseSelector li{margin-bottom:.5em}#baseSelector p{margin-bottom:.5em}#baseSelector a{text-decoration:underline;color:#003160;font-weight:600;margin-bottom:1em}#baseSelector img.watermark{position:absolute;bottom:1em;right:1em;width:13.125em;opacity:.25}#red_atlc_condition_management_sub_title-block_5cc6cd308efd2{color:#003160;margin-bottom:1.6em}#red_atlc_condition_management_sub_title-block_5cc6cd308efd2 h2.sub-title{font-size:1.25em;font-weight:400;margin-bottom:1em}#red_atlc_condition_management_sub_title-block_5cc6cd308efd2 p{margin:0} The Wheelchair Service provides wheelchair equipment, assessments and support for children and adults who need to use a wheelchair long-term (normally six months or more) due to a disability, terminal illness or severely limiting medical condition.

#baseSelector{margin-bottom:1.6em}#baseSelector h2{color:#003160;font-weight:600;font-size:1.6em}#baseSelector li{margin-bottom:.5em}#baseSelector p{margin-bottom:.5em}#baseSelector a{text-decoration:underline;color:#003160;font-weight:600;margin-bottom:1em}#baseSelector img.watermark{position:absolute;bottom:1em;right:1em;width:13.125em;opacity:.25}#red_atlc_condition_management_sub_title-block_5cc6ccab205f8{color:#003160;margin-bottom:1.6em}#red_atlc_condition_management_sub_title-block_5cc6ccab205f8 h2.sub-title{font-size:1.25em;font-weight:400;margin-bottom:1em}#red_atlc_condition_management_sub_title-block_5cc6ccab205f8 p{margin:0} Local support groups for those with vision impairment can help to reduce isolation caused by loss of vision. You can search for local visual impairment and information services in the UK through the NHS.

#baseSelector{margin-bottom:1.6em}#baseSelector h2{color:#003160;font-weight:600;font-size:1.6em}#baseSelector li{margin-bottom:.5em}#baseSelector p{margin-bottom:.5em}#baseSelector a{text-decoration:underline;color:#003160;font-weight:600;margin-bottom:1em}#baseSelector img.watermark{position:absolute;bottom:1em;right:1em;width:13.125em;opacity:.25}#red_atlc_condition_management_sub_title-block_5cc6cc0cf5dcd{color:#003160;margin-bottom:1.6em}#red_atlc_condition_management_sub_title-block_5cc6cc0cf5dcd h2.sub-title{font-size:1.25em;font-weight:400;margin-bottom:1em}#red_atlc_condition_management_sub_title-block_5cc6cc0cf5dcd p{margin:0} This can be a very difficult and scary time for families, as relationships and trust you have built up with doctors and children’s services will change. We provide advice, information and support through the transition from child to adult services.

#baseSelector{margin-bottom:1.6em}#baseSelector h2{color:#003160;font-weight:600;font-size:1.6em}#baseSelector li{margin-bottom:.5em}#baseSelector p{margin-bottom:.5em}#baseSelector a{text-decoration:underline;color:#003160;font-weight:600;margin-bottom:1em}#baseSelector img.watermark{position:absolute;bottom:1em;right:1em;width:13.125em;opacity:.25}#red_atlc_condition_management_sub_title-block_5cc6c42839a84{color:#003160;margin-bottom:1.6em}#red_atlc_condition_management_sub_title-block_5cc6c42839a84 h2.sub-title{font-size:1.25em;font-weight:400;margin-bottom:1em}#red_atlc_condition_management_sub_title-block_5cc6c42839a84 p{margin:0} Children who are not affected by the condition may also need support to cope with the changes to family life brought about by their family member’s leukodystrophy.  Children without the condition may feel upset and scared at what is happening and what may happen. The additional caring responsibilities faced by their parents may leave the child feeling left out and can cause jealousy. Alex TLC can provide support to help unaffected children, including directing families to specialist support to give a sense of normality to these children’s lives, including hospice support groups and connecting children in similar situations through our peer support network.