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The ability to function online is a large part of everyday life, however those with disabilities often face challenges accessing the right equipment or programmes to suit their needs. Ability Net are a registered charity offering tailored solutions for the digital needs of the disabled and elderly community.”
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Wheelchairs and Scooters
There are a wide range of wheelchairs available and you should be referred to your local Wheelchair Service for an assessment. This will ensure that the chair meet your needs in terms of size, comfort and posture control. Poor seating can lead to increased pain, particularly in the back, hips and neck, pressure sores and decreased mobility and independence.
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Employers should make reasonable adjustments to encourage people with disabilities and conditions such as leukodystrophies to apply for jobs and to give them a fair chance of success.
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It can be difficult to find suitable play activities for children who have disabilities and sensory impairment.
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There are several accessible leisure activities from bowling to swimming. Try to find a local hydrotherapy pool as this is a therapeutic whole-body treatment that involves moving and exercising in water – essentially physiotherapy in a pool. The water temperature is usually 33–36ºC, which is warmer than a typical swimming pool. Many hospices and hospitals have hydrotherapy pools.
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This information is intended to assist leukodystrophy patients and their families in the management of their condition. All information and links are based around UK services – our Support Service Team are happy to help with individual enquiries Contact both from the UK and abroad.
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