Community Weekend Planning Committee

Share your ideas and feedback about our weekend 💭

Would like to be part of our Community Weekend Planning Committee?

The committee will be involved in reviewing and supporting the development of our community weekend agenda. They will provide feedback and suggest ideas for the event, including activities and workshops.

What’s involved? Two one hour meetings on zoom prior to the weekend.

Don’t forget to book your place for our Community Weekend from Friday 28th April to Monday 1st May at Birmingham Hilton Metropole Hotel by completing our booking form: CW2023 Booking Form

If you have any questions, them please get in touch by emailing


Alex - The Leukodystrophy Charity