Community Weekend 2023

An exciting announcement for the last day of Leukodystrophy Awareness Month

We will be having our next in person Community Weekend on Friday 28th April to Monday 1st May 2023.

Please make sure to save this date in your diary! The venue is the Birmingham Metropole Hilton at the NEC Birmingham. We will be sharing further details about the event soon. If you have any questions, then please get in contact by emailing

We look forward to seeing you all there!

Alex - The Leukodystrophy Charity