You may have seen in previous correspondence from us that we are currently in the process of reviewing our website.
We would love to include more photos of our community members so we can show all the lovely individuals and families that make up the Alex TLC community.
We also hope we can use photos as a means of demonstrating the direct impact of the condition on people’s lives. We want to show how life is for individuals and families living with the condition: how it is to live with a leukodystrophy and how life has changed since diagnosis.
Please send us your photos, they will be used on our social media channels, website, and in our campaigns and projects. Send your photos to firstname.lastname@example.org