Community Ask for September

And feedback from our August community ask

We’d like to share our Ask Our Community for September:

A community member is asking for recommendations for flotations and support aids to be used in swimming pools

If you have any ideas or suggestions, please email them to info@alextlc.org

 

Thank you to everyone who got involved in our Community Ask in August. We asked for suggestions for an appropriate sensory gift for a 1 year old boy affected by infantile Krabbe Disease. We would like to share the feedback we received:

  • Fluffy or silky clothes
  • Textured and crinkly fabrics
  • Gentle music or story CDs
  • Microwavable blanket
  • Projector for the ceiling: can be watched whilst in bed and there are a variety available, including starry night
  • Sensory Items: microwaveable teddy, soft fluffy socks, aromatherapy oils

A couple of websites that sell sensory toys were also recommended:

Sensory Toy Warehouse

Baby Sensory Shop

Alex - The Leukodystrophy Charity