Community Ask for July

And feedback from our June community ask

We’d like to share our Ask Our Community for July.

Do you have a stairlift at home? Please share your experiences, including purchasing (which brands and types do you have) and using a stairlift

Please email your experiences to

Thank you to everyone who got involved in our Community Asks in June. We asked for tips or suggestions to keep cool in the hot weather. We would like to share the feedback we received:

-A neck fan from Amazon, it has three speeds and can be charged using USB cable

-Cold flannel

-Drink lots of water

-Fans (ceiling and floor)

-Cotton clothes

-Put feet in cold water

-Hydration sachets

-Cool shower

Alex - The Leukodystrophy Charity